Archive for the ‘cerebral palsy’ Category

Upper Extremity Splint Compliance and AT Use

Thursday, April 9th, 2009

Here is some information on an intriguing study in the Developmental Neurorehabilitation on children with hemiplegia and their use of upper extremity splints and assistive technology. The study reports that 56% of the children were prescribed UE splints but only 48% of those children were using the splints. In comparison, 46% of the children were prescribed assistive technology and 98% of those children were using the assistive technology provided to them. What a difference!

In my experience, compliance with orthotic use is frequently an issue. Some children dislike wearing them for various reasons – discomfort, appearance, parental dislike, etc. I attempted to find more research articles on compliance with upper extremity orthoses and came up empty handed. Does anyone have any articles to recommend regarding orthotic compliance in children?

I have heard educators and parents complain that at times assistive technology does not get used to its fullest potential due to lack of training with different products. It was promising to see that in this study this was not the case – 98% user rate is extremely high.

Reference: Russo, Remo Nunzio, Atkins, Renae, Haan, Eric, Crotty, Maria Upper limb orthoses and assistive technology utilization in children with hemiplegic cerebral palsy recruited from a population registerSN – 1751-8423
2009 Developmental Neurorehabilitation 12 (2): 92-99 URL – http://www.informaworld.com/10.1080/17518420902783223

Motor and Mental Skills in Toddlers with CP

Monday, April 6th, 2009

Developmental Neurorehabilitation published research on the association between mental and motor functioning in children with CP. This study looked at 78 toddlers with a diagnosis of cerebral palsy with GMFCS I-V. The researchers determined that when motor and mental functioning did not develop at the same time, it was always motor functioning that was more delayed than mental functioning. No children performed better on the motor section than the mental section.

This study can help therapists in everyday practice. I think first and foremost NEVER assume that a child’s mental age is equal to their motor age. It is our job to inform parents and school staff of this important information for young children with cerebral palsy. Any other thoughts on how the information can be put into practice?

Reference: Lotte Enkelaar ; Marjolijn Ketelaar; Jan Willem Gorter Association between motor and mental functioning in toddlers with cerebral palsy Developmental Neurorehabilitation, Volume 11, Issue 4 2008 ,pages 276 – 282 .

Free Hands Free Camera Mouse

Thursday, April 2nd, 2009

Heard about this one on Twitter from @assistivetechguru – www.CameraMouse.org. This is a free download for a mouse that works using only head movements. This is for children who can not use their hands but they do have reliable head active range of motion. For the program to work you do need a standard USB webcam, Windows Vista or Windows XP.

Physical Fitness and GMFM Scores

Friday, March 27th, 2009

Developmental Medicine and Child Neurology published research on the relationship of physical fitness and Gross Motor Function Measure scores in children with cerebral palsy (45 with hemiplegia and 23 with spastic diplegia). The study results indicated no relationship between aerobic capacity and body mass index and sections D (standing) and E (walking, running and jumping) on the GMFM. There was a moderate to high correlation between short term muscle power, agility, functional muscle strength and sections D and E on the GMFM. The authors conclude that this correlation can help to guide treatment planning to improve motor capacity in children with cerebral palsy.

Again, we see that muscle power and strength correlate with function in children with cerebral palsy. Always keep this in mind when working with children with cerebral palsy – increasing muscle strength can translate into improved function. Give parents simple activities to carry out during the day that will help to maximize muscle strengthening i.e. stair climbing, heavy work chores, etc. Try making muscle strengthening fun for children. Foster games and activities that children will want to participate in instead of just basic therapeutic exercises.

I was surprised to see that body mass index and aerobic capacity did not effect motor abilities.

Visit www.YourTherapySource.com/playstrong for an electronic activity book on muscle strengthening through play. For simple activities to carry out during the day check out Therapeutic Activities for Home and School at www.YourTherapySource.com/therexbook.

Reference: OLAF VERSCHUREN, MARJOLIJN KETELAAR, JAN WILLEM GORTER, PAUL J M HELDERS, TIM TAKKEN Relation between physical fitness and gross motor capacity in children and adolescents with cerebral palsy Developmental Medicine & Child Neurology
2009 1469-8749 PN: 0012-1622 DOI: 10.1111/j.1469-8749.2009.03301.x US: http://dx.doi.org/10.1111/j.1469-8749.2009.03301.x

Motor Skills and Function in Children with CP

Saturday, March 21st, 2009

Developmental Medicine and Child Neurology published research that compared children with cerebral palsy’s scores on the GMFM-66 and the Vineland over 3 years. The study results indicated that there is a significant relationship between what a child can do (GMFM)and what a child does do (Vineland). The relationship was more positive for GMFCS Level I children. Therefore, improvements in individual motor skills resulted in improved motor performance during personal and social skills. The authors recommend also focusing on environmental adaptations and mobility equipment.

This study is beneficial to justify why, at times, therapists recommend individual therapy sessions in an isolated setting outside of the classroom. If motor skills can be practiced and refined during therapy, then everyday functional skills should improve as a result as well especially in GMFCS Level I children with cerebral palsy.

Reference: MIRJAM VAN ECK, ANNET J DALLMEIJER, JEANINE M VOORMAN, JULES G BECHER
Longitudinal study of motor performance and its relation to motor capacity in children with cerebral palsy Developmental Medicine & Child Neurology 51:4(303-310) 2009. DOI: 10.1111/j.1469-8749.2008.03263.x

Motor Skills During Adolescence in children with CP

Wednesday, March 18th, 2009

Developmental Medicine and Child Neurology published research stating that adolescent children with cerebral palsy GMFCS Level III, IV and V demonstrated a functional decline in skills which were clinically significant. This longitudinal study followed 657 children with CP using the Gross Motor Function Measure-66. Children with cerebral palsy levels I and II did not experience a functional decline. Children at GMFCS Levels III, IV and V showed a peak in functional skills at ages 7 years 11 months for Level III and 6 years 11 months for Levels IV and V.

As pediatric therapists, can we make a difference in preventing or delaying this functional decline in GMFCS Level III, IV and V through direct therapy and consultation with parents? I would like to hope that we can, but insurance companies don’t pay for hope they want evidence. The good news is that this is important research to share with parents of children with cerebral palsy. We can inform that at GMFCS Level I and II we do not expect to see a significant decline in skills during adolescence. For children who are Levels III, IV and V, we can inform parents to possible expect a decline and work on prevention. Please comment or share your experiences.

Reference: STEVEN E HANNA, PETER L ROSENBAUM, DOREEN J BARTLETT, ROBERT J PALISANO, STEPHEN D WALTER, LISA AVERY, DIANNE J RUSSELL Stability and decline in gross motor function among children and youth with cerebral palsy aged 2 to 21 years Developmental Medicine & Child Neurology 2009 1469-8749 0012-1622
DOI: 10.1111/j.1469-8749.2008.03196.x http://dx.doi.org/10.1111/j.1469-8749.2008.03196.x

Check out Teaching Motor Skills to Children with Cerebral Palsy digital edition. This is a great book for any pediatric therapist or parent of a child with cerebral palsy.

Functional Physical Training and CP

Wednesday, March 4th, 2009

Recent research in Pediatric Physical Therapy reports on thirteen children with cerebral palsy who participated in functional physical training 2x/wk for 9 weeks resulting in significant improvements in ambulation, aerobic endurance, and walking distance.

This might seem obvious but I think therapists need to be reminded frequently what works time and time again – aerobic training results in improved functioning. Sometimes therapists can go off on too many tangents when working with kids. Sticking to the basics, muscle strengthening, practice and aerobic training gets results.

Now how to apply this study to school based therapy. Most children do not receive PT or OT 2x/week. Although, many receive PE or APE that many times. Try consulting with the PE teachers and help to create stations that work on aerobic conditioning. Also, try offering parents suggestions to do at home with aerobic stations that are simple to set up. Get the child motivated to participate. Create a chart – when 18 sessions are reached award that child with a prize. Any other ideas? Please comment.

Reference: Gorter, Hetty PT; Holty, Lian PT; Rameckers, Eugène E.A. PT, MRes; Elvers, Hans J.W.H. RI, MSc; Oostendorp, Rob A.B. Prof Dr (2008) Changes in Endurance and Walking Ability Through Functional Physical Training in Children with Cerebral Palsy [Research Report] Pediatric Physical Therapy:Volume 21(1)Spring 2009pp 31-37